Observing the 1980s
Lewis, Haydn (Part 4 of 11)
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Interviewee's home, Cardiff
Lewis, Haydn, (speaker, male)
Edwards, Sian, (speaker, female)
Part 4: Describes bleed and pain control. Importance of recognising bleed and treating early. 1977/8 left school with seven 'O' levels. Carpenter's apprentice at Turners. Experienced difficulties related to Haemophilia and after two years asked to leave. Awaiting structural engineer, architect course. Worked as Stage builder at Cardiff Opera House for six months. Gaynor pregnant. Went to college. Stephen born. Recap on four generations of Haemophilia. Significant people in formative life. Grandparent approachable and offered guidance. Relationship with father after separation from mother. Father living with Haydn's family later in life . Concerns about his health, related to alcohol. Important six months, relationship built up between Haydn's children and their grandfather. Sadness of relationship between children and grandmother. Significant long term relationship with Professor Bloom, consultant Haematologist, Cardiff Infirmary. Memory of father visiting hospital once. More opportunities for relationships with doctors rather than father. Little involvement in medical decisions. Few bleeding events at seventeen. Restricted employment opportunities. Meeting Gaynor and reaction to Haemophilia.
Interviewed for the Haemophilia and HIV Life History Project